I am inspired by the children who battle cancer. Here I keep a diary of their stories and the influence they have left on me.

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My heart is terribly broken. I can't get rid off the lump in my throat. Callie has become an Angel Baby. I loved following her story, watching live updated, seeing her playing with Peppa Pig toys, hearing her giggles. I was looking forward to see positive news from the clinical trials. I got fascinated by her strength and sassy self. I will so much miss her and many things about her. It is now so much heavier to listen to her favorite song and to watch Peppa Pig.

Angel baby. I love you, I do.

#Callie #AngelBaby #Forever3 #Neuroblastoma #ChildhoodCancer

Today, I am deeply heartbroken by the news of Eislyn gaining her angel wings.

Eislyn was diagnosed with Acute Myeloid Leukemia in November 2019 when she was one year old. Unfortunately the bone marrow transplant she received didn't work and she relapsed. She left Boston Children's to go home on hospice in July 2020. Since then she had been enjoying her unknown time left with her family, having adventures, making memories, smiling in all photos posted on Facebook. On 24th September she got to see her 2nd birthday, which I am both happy and sad about it. It happened to be her 2nd and last birthday on the earth. 2 extremely short years.. Life is unfair! Why did she ever have to give such huge battle in her little lifespan while there are millions out there, who don't even deserve to live, enjoying easy and long life?

It always makes me go insane as I see that Eislyn and children like her are totally oblivious to what is happening to them and how much time left they have. Eislyn kept fighting so hard till the very end without knowing about her condition. She has become an inspiration to me to remember forever by showing her beautiful smiles, strength and spirit of never give up. I also like her fantastic unique name that means Dream.

I will keep watching her memories on the Fb page: Eislyn Strong

#Forever2 #Eislyn #EislynStrong #ChildhoodCancer #AML

Callie travelled to Texas; got admitted in Texas Children's Hospital and took her modified cells. In the following days, she began to feel awful. She threw up often, suffered bowel issues. Her oxygen level dropped and abdomen got swollen. Scans showed a fast progressing new tumor on her neck. Unfortunately the treatment in Texas didn't seem helpful.

Callie got transferred back to Cincinnati Children's Hospital as fast as possible due to her fast growing tumors. She started radiation therapy to her neck and liver, and a trial drug named venetoclax combined with chemotherapy. Her abdomen is still swollen and hurting. She has been fighting this very aggressive cancer in all pain and tears with her all strength. Doctors don't think she can make it till Christmas if the trial drug doesn't work. This is definitely not what Callie's family has been expecting to hear in September. They feel completely crashed. So do I as I see them going through disrupted cancer life. They are getting prepared for hospice service for kids. The word hospice has put a lump in my throat. The new trial has to work. It's recently my only wish.😭 They will keep fighting and looking for any options, meaning they are not giving up. However, Callie deserves to be home, to have more time to play, giggle, and enjoy whatever she wants together with her family. I am so sorry that she thinks the hospital life is her normal and she is oblivious to what's happening to her. She misses home, home misses Callie. It drives me crazy doing nothing about her cancer.

Venetoclax is used against a range of cancers. It is the most effective in combination with other drugs [https://www.neuroblastoma.org.au/appeal/researchappeal]. I found the relevant clinical trial on the Cincinnati's webpage. My heart goes out to tiny but mighty Callie and her lovely family. 💛🎗️

Clinical Trial: https://www.cincinnatichildrens.org/service/c/clinical-trials/studies/M13-833

#Neuroblastoma #ChildhoodCancer #Callie

Atacan Demiralp
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