One For All

12 February 2021 5:44 pm EST. Dear Kaylee, I didn't know you have a second name, "Jean". Just another beautiful detail about you making me wanna cry. I am happy that I did tell you I love you before it's too late. I am terribly sorry that I let you down, that I couldn't do anything to save you. I promise I will never ever forget you. Your smiles has become a part of my heart. You are the most beautiful girl ever. You are the superhero of my dreams. Your courage and determinat

Kaylee is out of options. She is going home to enjoy huggings, kisses, snuggles with her beautiful mama and sister. I hate the word hospice. I hate cancer. I hate watching kids return home on hospice. I hate every single human being who ignores these children and prioritize other bullshit problems over childhood cancer. I was so hopeful about her treatment. I was daily thinking about her as she keeps inspiring me. That news has totally ruined me. I don't want to see her weari

I've been following the journey of this beautiful princess for about 8 months. Kaylee was diagnosed with medulloblastoma in 2018. She had been off treatment since her brain scans showed NED in September 2019. She had a small spot in her spine though, thus it was not declared NED then. In early December, her MRI and LP tests in CHOP unfortunately showed there are cancer cells in brain and spine. They have planned a new treatment roadmap and she is proceeding with it at the mom